Featured Posts…

Eating sugar again!
Ok, I have to admit the stress has gotten to me. I have driven through Chick-fil-A the past two days solely for chocolate chip cookies. No chicken on my menu! I think I made it almost 4 weeks without any sweets or gluten but I have been dying for cookies. I got so desperate [Read On]
Does your bed have a frame?
I am sure almost 100% of my readers sleep on a bed which has a frame, but Lou, Tiara and I don’t. The reason why? About 4 years ago Tiara was having tons of tonic clonic and drop seizures. She woke up many mornings on the floor and after her teeth kept chipping off we [Read On]
Feeling panicky
SATURDAY 6:30am It is Saturday morning and I just woke up. I have a list a mile long of potential “to -do” items that would make my house even cleaner before it hits the MLS on Monday. My whole body aches, especially my hands and feet. I am exhausted and stressed and keep wondering if [Read On]

And now the dryer broke!
Last night I started on my piles of laundry that I had been ignoring during my home improvement mania, when I discovered the clothes weren’t drying all the way. Actually not at all.. Hmmmm. I was to tired to deal with it last night so I decided to ignore the problem until the morning. This [Read On]

Our house is for sale!
So I have been talking off and on about moving and this weekend Lou and I decided we needed to put our house up for sale. It’s time. Our interest only loan just ended last month and my hubby is killing himself working to make the crazy outrageous payment. The increase in payment and [Read On]
11 hours of painting
Hi Everyone….. I am so delirious at this point I have nothing to offer except this short you tube video of what I have been doing the past day. I promise to give you the full update on Wednesday. Thanks for being patient with me. Have a great day! xoxo tiffani
Faith
Well, I worked like a crazy woman all weekend and am exhausted beyond anything. Many things changed in my life this weekend, which I am not ready to talk about yet but will share with you later in the week. Right now I wanted to share my favorite poem with you. I used to have [Read On]

My home improvement plans for the weekend
Today I finally decided to tear out the bush/tree that I stare at everyday and HATE with a passion. I knew it would be hard to get out and have been putting it off but after my walk today, Tiara was still sleeping so I went to work. I first tried to dig it out [Read On]

I miss my husband!
This is very hard for me to admit but for the past few days I have actually missed my husband. I think the last time I missed him was when we were dating long distance, 23 years ago. Ever since we have been married I have continued to “play hard to get” as he [Read On]

Could she be the one?
I received a call this morning from the company who is supposed to be providing a caretaker for Tiara. They said they had someone for Tiara and would be sending her over at 2 p.m. today? Really, are you sure? I was just complaining to Lou this morning that I hadn’t heard from them in [Read On]

Does your neighbor like you?
I think I have mentioned before that one of our neighbor’s isn’t a big fan of ours and the feeling is mutual. We were friendly for the first few years after they moved in and then everything went to pot after a property dispute which almost ended in blows between Lou and “the guy.” After [Read On]

Why are my muscles sore?
I have woken up everyday for the past week with really sore muscles and yet I haven’t exercised all week. HMMMM, I guess it is my nonstop gardening, manhandling Tiara in her current ongoing horrible mood and pushing her 185+ body in the wheelchair across grassy soccer fields for 5 days. Talk about weight training, [Read On]

Who turned off the water?
So Wednesday morning early I heard a knock on the door and when I opened it, there was the water man. He gave me a piece of paper and said the water would be turned off for a half an hour today and from 9:30 until 1:00 I think, on Thursday. I thanked him, shut [Read On]

Where are they supposed to go?
First I want to thank everyone for all their kind comments regarding me continuing to blog. I have decided the benefits outweigh the negatives by a huge proportion so I plan on marching forward with a smile on my face. Thanks again for the encouragement, you know how to make a girl feel wanted. I [Read On]
Starting to question blogging
I haven’t been in the mood to write my blog much the past week and I think it is because I have been so involved in my garden. I have this habit of obsessing on something and giving it tons of effort and then abandoning the hobby and moving on to another project. My history [Read On]

A weekend without the computer or the hospital!
So you may have noticed I didn’t have a post on Monday, Memorial Day and that is because I decided to stay computer free Saturday and Sunday and just enjoy the weekend. I spent my time gardening! The great news is that Tiara made it through the weekend without a hospital visit. I took her [Read On]

Did I jinx myself?
So I may have jinxed myself after talking about how great Tiara has been doing this past week. Last night she was breathing funny during the night and kept tearing off her oxygen. I must have gotten up 4 times to put it back on, check her oxygen level and then feel her chest. She [Read On]

TT is almost totally back to her old self!
So the past few days Tiara has done a few things she hasn’t done since last year. The first I already mentioned yesterday, was our trip to the park on Tuesday. She walked all the way from the car, across the black top and played basketball for 30 minutes. I can’t even remember the last [Read On]

Day 1 of the cleanse and it’s over!
So far so good in the cleanse department, as of 4 pm on day 1. I skipped my wine last night in preparation for the cleanse and as a result had a worse night sleep than normal. Every time Tiara moved, I jumped up to see what was wrong and it felt like I was [Read On]

And today I start my 3 day cleanse!
I know you have heard me complain about always being tired, especially lately and I am finally fed up! I can’t take being tired anymore. I have exhausted all my ideas of how to fix my constant fatigue and nothing has worked so far. Last week I went in for another b12 shot last week, [Read On]
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My Journey with Tiara…
hi, I’m tiffani
Nothing fake or phony as I blog about my life as a mother and wife dealing with one daughter's daily seizures, autism, mental delay, violence and numerous other medical problems, while trying to raise the other two in a healthy, happy environment. I hope my blog will make you laugh, cry and think about real life issues every time you read a post.
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featured posts

my journey with tiara, week 1…
Like most major decisions in my life, the decision to have a second child was made on a whim. One December morning in 1997, my five year old daughter, Tabitha walked into the bathroom when I was getting ready for work and asked. “Mom, Am I ever going to have a sister or brother”? [Read On]

My Journey with Tiara, week 2…
When Tiara was four months old, she would cry and cry but not like other babies, it seemed different. None of the normal tricks would work like driving her in the car, putting the car seat on the dryer with it on, loud music, lullaby’s, rocking her, etc. One day I discovered she would stop [Read On]

my journey with tiara, week 3….
Tuberous Sclerosis? What is that? I can’t actually remember what Dr. Stein told us on that Friday afternoon in May 1999 because at that exact moment I was in a state of shock. He said something about our daughter having brain tumors, abnormal brain function, a genetic condition, tumors in her heart, epilepsy, possible [Read On]

My Journey with Tiara, week 4…
Tiara is continuing to sleep most of her days away. The doctors believe it is a side effect from the phenobarbital and the fact that she is still having infantile spasms daily. At 9 months old she is no longer able to sit up on her own even though she had previously crossed this [Read On]

My Journey with Tiara, week 5
Fall is my favorite time of year, but the fall of 1999 was memorable for all the wrong reasons. Tiara made it to her first birthday and appeared to be seizure free. Because she was on phenobarbital and Vigabatrin for her seizures the doctors decided to wean her off the Phenobarbital since it can cause [Read On]
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